By Peter Jones
'Living with haemophilia' has tested itself because the entire consultant to haemophilia and similar problems. Written basically for affected households, the publication additionally offers an invaluable and up to date advisor for medical professionals, paramedical employees, together with nurses and physiotherapists, and academics. It explains the inheritance of haemophilia, bleeding episodes and the way to regulate them, secure remedy together with domestic remedy and prophylaxis, and the clients for a genetic treatment.
Other assurance contains: intercourse and relations making plans; formative years with haemophilia; schooling and employment; activities and commute; prior uncomfortable side effects of remedy together with HIV and AIDS
Sensitively and obviously written at a suitable point for people with haemophilia, their households and associates. This booklet goals to dispel the myths and lift information of the realities of haemophilia. It takes a good method of actual improvement and encourages the pursuit of fit, lively and fruitful dwelling. Peter Jones exhibits how, with the correct care, the individual with haemophilia can stay an lively and common lifestyles. He addresses all of the questions that people with haemophilia or these taking good care of them want to know the solutions to, with humour and actual main issue. He has labored with these stricken by it for over 30 years and this booklet comprises his wealth of experience.
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Extra resources for Living with Haemophilia
Bruising may appear on the arms, legs, hips, and buttocks, and sometimes on the trunk, but he is well padded with fat and this gives him natural protection. The bruises are almost always superficial and rarely painful or dangerous. An exception to this is bruising around the head. All small boys bang their heads as they start to toddle and lose their balance, but some seem to be especially prone to this type of injury. For them, protection may be required. Cycle and sports shops nowadays stock a range of colourful helmets for children.
This is one of the problems with having affected children who look perfectly normal most of the time. It is something to learn to live with. When faced with such people, either try explaining the reasons sensibly, or ignore them. Or, if the provocation really is too great, ‘spit in their eye’ and forget about it! Families who have had other children before the son with haemophilia already have experience of the normal growth and development of children, with all the usual successes and setbacks as kids grow up.
Similar cards are issued in many countries, and an international card is available from the WFH. In particular, it is important that his factor VIII or IX level is recorded because on this depends the specific treatment of his disorder. For instance, if he has a factor VIII level of over 5 per cent he may be able to be treated with desmopressin rather than with a blood product. Throughout his childhood his doctor will routinely test him for inhibitors to factor VIII or IX. The discovery of an inhibitor can mean that a change in treatment is needed.